Tuesday, April 23, 2013

Wrap Up of Today's (4/23) Baltimore Visit

This one isn't really full of good news or bad news.  Today was not as exciting as I wanted it to be or as productive as I was hoping for. This is going to be short and sweet because I know some of you are waiting to hear from me; it's been a long day and I just can't be bothered with writing enthusiastically. In fact I am quite pessimistic tonight so you might want to skip this one all together.

The first bump in today's road was the fact that magically, and not surprisingly, the two appointments I had at the OB office were double booked, actually my appointment times only existed in their old system.  So I, the tired chick that drove 3+ hours, had to be rescheduled for the appointment.. You'd think they would reschedule one of their Baltimore patient's appointments but I guess that is just me.  I have to drive back on Friday for a 45 minute appointment, which means canceling PT again and blowing another $65 in gas.  Unreal.   BUT they were able to squeeze me in at the hospital for my anatomy ultrasound.  Well I must tell you Mr. Pipster was none too happy about his lack of food intake and his mama being annoyed in a waiting room for an hour.  He wouldn't show his face to complete the anatomy scan.  They said he wasn't big enough to complete it but I think it's really  because he wouldn't move.  I asked if I could have a picture from this ultrasound.  The chick gave me a picture which was zoomed in on his foot. Really? Do I look at all entertained by any of this, lady? Then Miss Mystery Doctor comes in and tells me that everything looks good so far but they want me to come back down in two weeks in order to take another ultrasound because they couldn't complete the measurements.  I kindly (with difficultly on the kindly) told her that I was getting an ultrasound and consultation in Scranton and surely they can just send the photos down to Hopkins. Nope.  She said, "Yeah, we really don't like to use other people's photos."  They are not down with OPP.  An upside to that fiasco of an ultrasound, the tech let me audio record (not video, you cannot video record your own child) Pip's heartbeat.  I was happy that she snuck that in because that "phoot" photo just wasn't doing it for me.  His heartbeat is now my text tone :) 

I finally made it to Dr. Kelley, late and frazzled, around 4:00.  He was absolutely furious over the scheduling confusion and even more baffled by that doctor, that I really will never see again, not being down with OPP. Hopefully, he will be able to take care of all of that and  I won't have to go down on Friday.  

So Kelley seemed to have had a rough week too as the "thing" he thought was wrong with me is not wrong with me.  The symptoms or markers do not fit my lab work. I am back to where I started.  Actually I'm even worse than when I started because what he thought was originally wrong with me isn't wrong with me at all anymore. My body adapted and the speech I would give to those who wanted to know what my story was no longer fits.  I'll tell people my old story anyway though because it's better than shrugging my shoulders.  Kelley does still believe that the chances of Pip having what I have are extremely slim, but what the heck is slimmer than one person in the forkin' world? I am now concerned that if whatever is wrong with me is wrong with Pip that they do not know what IS wrong with me to help Pip.  I mean surely they will be able to keep him alive but I guess I hoped that if he was born like me it would be an easy fix and he wouldn't have to live under the conditions I live with.  Dr. Kelley is very optimistic that Pip will be fine but, naturally, I worry.  Another upside is that I will be able to stay awake during the C-Section. I didn't anticipate this and I have a bit of anxiety about it because I am sure my nerves will be shot by that point in time but I am also very excited that Dann and I will be the first ones to meet Pip and I won't be the last one to meet him.  Surely I should be the first one since I've been carrying him all of this time. Kelley doesn't anticipate any extreme circumstances that would make me have to be put under for the C-Section.  Whatever gets you through the night, right?

And lastly, he is still very optimistic for the surgery that would straighten by body out.  Naturally that is not even on the table until after Pip is born but it's something that I have been wanting for a long time and hopefully that works out.  

So for now Pip and I are going to chill out, listen to the Beatles, and I'm going to read "Oh, the Places You'll Go!" to him.  Oh, I am quite sure he kicked me in the ribs when I took the headphones off of my belly the first time I played the Beatles for him.  Like he won't ever hear them again. 

Sorry I don't have better news for you guys.  Sure appreciated all of your support and good vibes the over the last month. Keep them coming for Pip though :) 

And I've been up for 21 hours so if there are any errors you can just deal with it because everyone in a while you just need to accept that life is one big run on sentence that you just can't figure out

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